Breaking bad news in ophthalmology: a literature review / Comunicação de más notícias em oftalmologia: uma revisão de literatura

ABSTRACT Medical specialties have recognized that breaking bad news assists clinical practice by mitigating the impact of difficult conversations. This scenario also encourages various studies on breaking bad news in ophthalmology since certain ocular diagnoses can be considered bad news. Thus, the objective is to review the scientific literature on breaking bad news in ophthalmology. The literature databases like MEDLINE/PUBMED, EMBASE, LILACS, SCOPUS, COCHRANE, and SCIELO, were screened for related research publications. Two independent reviewers read all the articles and short-listed the most relevant ones. Seven articles, in the formats of original article, review, editorial, oral communication, and correspondence, were reviewed. Conclusively it reveals that ophthalmologists are concerned with communicating bad news effectively but lack related studies. Nevertheless, there is a growing realization that training in breaking bad news can increase physicians' confidence during communication, thus, benefiting the therapeutic relationship with the patient and his family. Therefore, it would be valuable to include breaking bad news training in the curriculum of residencies.

RESUMO O reconhecimento sobre a comunicação de más notícias como mitigadora de conversas difíceis por outras especialidades médicas, incentiva o estudo desta temática na oftalmologia. Sendo assim, o objetivo deste estudo é revisar a produção de pesquisas científicas sobre a comunicação de más notícias em oftalmologia. Para isso, foi realizada uma revisão de literatura. As bases de dados utilizadas foram MEDLINE/PUBMED, EMBASE, LILACS, SCOPUS, COCHRANE e SCIELO. Dois revisores independentes leram todos os artigos e selecionaram a amostra final. Sete artigos foram escolhidos nos formatos de artigo original, revisão, editorial, comunicação oral e correspondência. Os oftalmologistas estão preocupados em comunicar as más notícias de forma eficaz, mas faltam estudos sobre o tema. No entanto, há uma crescente percepção de que o treinamento de comunicação de más notícias aumenta a confiança dos médicos na comunicação, beneficiando a relação terapêutica. Portanto, seria valioso incluir este treinamento no currículo das residências.

Sustainability disclosure in the Ecuadorian banking sector: channels used, determining factors and type of information revealed

This study aimed to provide evidence on sustainability disclosure in the banking sector of Ecuador Using a descriptive-correlational approach, three key areas were examined: the most common reports for the disclosure of sustainability information, factors influencing banks' willingness to disclose, and the type of sustainability information being disclosed. Fisher's test and mean difference tests were employed to identify factors influencing banks' willingness to disclose sustainability information. Additionally, a content analysis was conducted to identify the main themes disclosed by banks regarding sustainability An index incorporating environmental, social, economic, and governance aspects was utilized for this analysis. The findings revealed low levels of disclosure, a higher prevalence of specialized reports, a positive association between willingness to disclose and organizational visibility, and a predominance of social dimension disclosure practices. These findings underscore the need to enhance disclosure standards and strengthen communication with stakeholders in Ecuador's banking sector. JEL CLASSIFICATION MI0, MI4; G2I

Este estudio buscó proporcionar evidencia sobre la divulgación de sostenibilidad en el sector bancario de Ecuador Mediante un enfoque descriptivo-correlacional se abordaron tres temáticas: los medios más utilizados para divulgar información de sostenibilidad, los factores que influyen en la disposición de los bancos a divulgar y el tipo de información sobre sostenibilidad que divulgan. Se utilizaron las pruebas de Fisher y de diferencia de medias para identificar los factores que influyen en la disposición de los bancos a divulgar información de sostenibilidad. De igual forma, se realizó un análisis de contenido para identificar los temas principales que divulgan los bancos sobre sostenibilidad. Para ello, se usó un índice que identificó aspectos ambientales, sociales, económicos y de gobernanza. Los resultados revelaron niveles bajos de divulgación, un mayor uso de informes especializados, una asociación positiva entre la disposición a divulgar y la visibilidad de la organización, y una predominancia de la divulgación de prácticas en la dimensión social. Estos hallazgos resaltan la necesidad de mejorar los estándares de divulgación y fortalecer la comunicación con los grupos de interés en el sector bancario de Ecuador. CLASIFICACIÓN JEL M10, M14; G21

Este estudo buscou fornecer evidências sobre a divulgação da sustentabilidade no setor bancário do Ecuador. Usando uma abordagem descritiva-correlacional, foram abordadas três questões: os meios mais comuns usados para divulgar informações sobre sustentabilidade, os fatores que influenciam a disposição dos bancos em divulgar e o tipo de informações sobre sustentabilidade que eles divulgam. O teste de Fisher e os testes de diferença de médias foram usados para identificar os fatores que influenciam a disposição dos bancos em divulgar informações sobre sustentabilidade. Da mesma forma, foi realizada uma análise de conteúdo para identificar os principais tópicos que os bancos divulgam sobre sustentabilidade. Isso foi feito por meio de um índice que identificou questões ambientais, sociais, econômicas e de governança. Os resultados revelaram baixos níveis de divulgação, um maior uso de relatórios especializados, uma associação positiva entre a disposição de divulgar e a visibilidade organizacional, e uma predominância de divulgação de práticas na dimensão social. Essas conclusões destacam a necessidade de melhorar os padrões de divulgação e fortalecer a comunicação com as partes interessadas no setor bancário do Ecuador. CLASSIFICAÇÃO JEL M10, M14; G21

Revelar e ter com quem contar: infertilidade e apoio social / Revelar y tener con quien contar: infertilidade y apoyo social / To disclose and have someone to count on: infertility and social support

Infertile couples seeking treatment experience a social stigma that can lead to the need for privacy and, in turn, compromise their access to social support. This multiple case study, that involved the collection of sociodemographic and health data and interviews with four heterosexual couples accessed by convenience, aimed to examine the perception of the couples about the social support received after the disclosure of the condition of infertility and/or of the assisted reproductive technology treatment. The cases were analysed individually and comparatively. From the couples' statements, it is highlighted that all of them revealed something about infertility and/or treatment at some point in the process, although some considered not revealing it. Both support and lack of support were perceived from the revelations. The non-disclosure was motivated by self-preservation and by avoidance of social pressure. The findings indicate the importance of psychological intervention to expand the couples' social support.

Parejas infértiles que buscan tratamiento experimentan un estigma social que puede acarrear la necesidad de privacidad y, a su vez, comprometer el acceso al apoyo social. Ese estudio de múltiples casos, que involucró la recogida de datos sociodemográficos, de salud y entrevistas con cuatro parejas heterosexuales accedidas por conveniencia, buscó examinar la percepción de las parejas sobre el apoyo social después de la revelación de la condición de infertilidad y/o del tratamiento con técnicas de reproducción asistida. Los casos fueron analizados individual y comparativamente. De las declaraciones de las parejas, se destaca que todas revelaron algo sobre la infertilidad y/o el tratamiento en algún momento del proceso, aunque algunos consideraron no revelarlo. Se percibió tanto el apoyo como la falta de apoyo a partir de las revelaciones. La no revelación fue motivada por la autopreservación y por la evitación de presión social. Los hallazgos indican la importancia de la intervención psicológica para ampliar el apoyo social de las parejas.

Casais inférteis que buscam tratamento experimentam um estigma social que pode acarretar a necessidade de privacidade e, por sua vez, comprometer o acesso ao apoio social. Este estudo de casos múltiplos, que envolveu a coleta de dados sociodemográficos, de saúde e entrevistas com quatro casais heterossexuais acessados por conveniência, objetivou examinar a sua percepção sobre o apoio social recebido após a revelação da condição de infertilidade e/ou de tratamento com técnicas de reprodução assistida. Os casos foram analisados individualmente e comparativamente. A partir das falas, destaca-se que todos revelaram algo sobre a infertilidade e/ou o tratamento em algum momento do processo, ainda que alguns tenham considerado não revelar. Percebeu-se tanto apoio como falta de apoio diante das revelações. A não revelação foi motivada pela autopreservação e pela evitação de pressão social. Os achados indicam a importância da intervenção psicológica para ampliar o apoio social dos casais.

Effects of acceptance and commitment therapy on self-disclosure, coping style and post-traumatic growth of patients with ovarian cancer receiving chemotherapy after surgery / 中国实用护理杂志

Objective:To explorethe effect of acceptance and commitment therapy on self-disclosure, coping style and post-traumatic growth in patients with ovarian cancer undergoing chemotherapy after surgery.Methods:A total of 84 patients with ovarian cancer undergoing chemotherapy after surgery were recruited from the gynecology ward of the First Affiliated Hospital of University of Science and Technology of China for randomized controlled trial, from February 2022 to October 2022. All participants were divided into the intervention group and the control group with 42 patients in each group by random number table method. The patients in control group received routine care. The intervention group was given acceptance and commitment therapy (ACT) on the basis of the control group and intervened for three cycles of chemotherapy. The scores of Distress Disclosure Index (DDI), Cancer Coping Modes Questionnaire (CCMQ), and Post-Traumatic Growth Inventory (PTGI) were compared between the two groups before and after intervention.Results:There was no significant difference in the scores of DDI, CCMQ and PTGI between the two groups before intervention ( P>0.05). After intervention, DDI scorein intervention group was (38.81 ± 5.96) points, significantly higher than that in control group (34.43 ± 4.79) points, the difference was statistically significant ( t = 3.71, P<0.01). In terms of coping styles, after intervention, the scores of five dimensions of fantasy, resignation, avoidance, catharsis and confrontation were 6.00(6.00, 8.00), 9.00(8.00, 12.00), 9.00(8.75, 11.00), 7.00(6.00, 8.00) and 20.00(16.00, 21.00) points in the invention group, compared with the control group of 8.00(7.75, 9.00), 11.00(9.75, 13.00), 11.00(9.00, 13.00), 9.00(8.00, 12.00) and 16.00(13.00, 18.50) points, the differences were statistically significant ( Z = 2.86 to 5.11, all P<0.01). The total PTGI score in intervention group was (71.43 ± 8.68) points, significantly higher than that in control group(63.98 ± 6.92) points, the difference was statistically significant ( t = 4.35, P<0.01). Conclusions:ACT can increase self-disclosure, enhance positive coping, and promote post-traumatic growth in ovarian cancer patientsundergoing chemotherapy after surgery.

The chain mediating effect of nursing organization climate perception and professional identity between self-disclosure and transformation impact of new nurses in oncology department / 中国实用护理杂志

Objective:To investigate the current situation and correlation between organizational climate perception, professional identity, self-disclosure and transformation impact of new nurses in oncology department, and explore the chain mediating effect between organizational climate perception and professional identity between self-disclosure and transformation shock, so as to provide basis for further formulating the intervention plan of transformation impact.Methods:This study was a cross-sectional survey. From August 2021 to April 2022, a total of 252 newly graduated nurses in oncology department from nine Class ⅢGrade A hospitals in Henan Province were selected as the research objects by the convenient sampling method. General Information Questionnaire, Transformation of New Nurses Impact Evaluation Questionnaire, Distress Disclosure Index, Nursing Organization Climate Perception Scale, Professional Identity Scale were used for survey. Pearson correlation analysis was performed, and AMOS26.0 software was used to build a chain intermediary model, and the model was tested by Bootstrap method.Results:The total score of the transformation impact of new nurses in the oncology department was (96.51 ± 13.04); the total score of the Distress Disclosure Index was (33.84 ± 7.18); the total score of Nursing Organizational Climate Perception Scale was (99.16 ± 12.97); the total score of the Professional Identity Scale was (91.23 ± 19.92). Self-disclosure, organizational climate perception and professional identity were negatively correlated with transformation impact ( r = - 0.743, - 0.684, -0.631, all P<0.05). The indirect effect of self-disclosure on transformation impact was true, and the total indirect effect was 0.435. The specific mediating effect of nursing organizational climate perception accounted for 51.5% (22.4/43.5) of the total indirect effect and that of professional identity 15.9%(6.9/43.5) of the total indirect effect. The organizational climate and professional identity accounted for 32.4%(14.1/43.5) of the total indirect effects. Conclusions:Self-disclosure, organizational climate perception and professional identity of new nurses in oncology department was negatively correlated with transformation impact. Self-disclosure is positively correlated with organizational climate perception and professional identity, organizational climate perception and professional identity play a chain mediating effect between self-disclosure and transformation impact. It is suggested that managers should adopt positive and effective self-disclosure intervention programs and develop relevant training programs to improve the organizational climate perception and professional identity level of new nurses in oncology department, so as to reduce their transformation impact.

Investigation on the status quo of social alienation in maintenance hemodialysis patients and its correlation with self disclosure and social support / 中国实用护理杂志

Objective:To investigate the status of social alienation in maintenance hemodialysis (MHD) patients, and analyze its correlation with self disclosure and social support.Methods::From May 2019 to March 2021, 156 MHD patients admitted to Nanyang Central Hospital were selected as the research objects by using convenient sampling method. A cross-sectional survey was conducted by using general information questionnaire, general alienation scale, pain disclosure index scale and social support scale.Results:A total of 176 questionnaires were issued, with an effective recovery rate of 88.64%(156/176). The social alienation score of 156 patients with MHD was (41.57±4.89) points, which was at the upper-middle level and negatively correlated with the total scores of the Distress Disclosure Index and the Perceived Social Support Scale ( r=-0.526, -0.284, all P<0.01). The results of multiple linear regression analysis showed that age, educational level, and per capita monthly household income were the main factors affecting social alienation ( β=0.199, -0.361, -0.290, all P<0.01). After controlling for the above factors, self disclosure and social support independently explained the variance of social alienation in MHD patients increased by 20.2% ( β=-0.440, -0.200, all P<0.01). Conclusions:MHD patients have a high sense of social alienation. Medical staff should pay attention to patients who are older, less educated, and have low family income. Self disclosure and social support are modifiable variables, so medical staff can reduce their social alienation and improve the quality of life by training patients on self disclosure and improving the level of social support.

Reações de mães de meninos vítimas de violência sexual diante da revelação / Reacciones de madres de niños víctimas de violencia sexual frente a revelación / Mother's reactions towards their sons' disclosure of sexual violence victimization

RESUMO Os estudos existentes acerca da revelação da violência sexual são, em sua maioria, baseados em casos de meninas. À vista disso, objetivou-se conhecer as reações protetivas e não protetivas de mães e pais diante da revelação de meninos vítimas de violência sexual. Para tanto, foi realizado um estudo qualitativo, por meio de entrevistas, com nove mães. Em seguida, efetuou-se a análise temática dos dados, que resultou em seis temas: momento da revelação; confiança e desconfiança; acolhimento; busca de ajuda; emoções; e proteção. Tomados em conjunto, os resultados indicam que as mães apresentaram, no geral, reações protetivas diante da revelação, evidentes em todos os temas identificados. A partir do momento da revelação, as mães confiaram nos seus filhos e buscaram acolhê-los por meio de uma escuta atenta, também, cabe dizer, algumas entraram em estado de paralisia e entristecimento. Esse acolhimento foi seguido de busca de informações e de atendimento especializado. A proteção ocorreu, ainda, por meio do afastamento dos agressores e monitoramento da rotina dos filhos. Nesse sentido, é fundamental que haja investimento em ações de conscientização sobre os serviços disponíveis para que cuidadores possam proteger crianças e adolescentes em risco. Além disso, são necessárias intervenções que visem auxiliá-los no manejo de seus sentimentos diante da revelação, bem como em relação às consequências da violência para crianças e adolescentes.

RESUMEN. Los estudios existentes sobre divulgación de violencia sexual se basan principalmente en casos de niñas. El objetivo era conocer las reacciones protectoras y no protectoras de madres y padres ante la revelación de niños que son víctimas de violencia sexual. Se realizó un estudio cualitativo, a través de entrevistas con nueve madres. Se llevó a cabo un análisis temático de datos, que resultó en seis temas: momento de revelación, confianza y desconfianza, acogida, búsqueda de ayuda, emociones y protección. Los resultados indican que las madres mostraron reacciones protectoras a la revelación, evidente en todos los temas. Desde el momento de la revelación, las madres confiaron en sus hijos y trataron de recibirlos escuchando atentamente, algunos de los cuales entraron en un estado de parálisis y tristeza. Siguió la búsqueda de información y asistencia especializada. La protección también se produjo mediante la eliminación de agresores y el monitoreo de la rutina de los niños. Es necesario invertir en acciones de concientización sobre los servicios disponibles. Además, se necesitan intervenciones para ayudarlos a manejar sus sentimientos ante la divulgación.

ABSTRACT. Studies on the disclosure of sexual violence are majorly based on cases involving girls. The objective was to investigate protective and non-protective reactions of mothers and fathers of boys towards the disclosure of sexual violence victimization. In this qualitative research, we interviewed nine mothers and analyzed the data using thematic analysis, which resulted in six themes: moment of disclosure, trust and distrust, welcoming, help seeking, emotions, and protection. Altogether, results showed that mothers, in general, presented protective reactions towards the disclosure, which was evident in all identified themes. After disclosure, mothers trusted their sons and sought to protect them by attentive listening, although some of them entered a state of paralysis and sadness. This welcoming of their sons' disclosure was followed by seeking information and specialized treatment. Protection was also identified by withdrawing from aggressors and monitoring the boys' routines. Thus, it is necessary to invest in actions to raise awareness of the available services so that caretakers can protect children and adolescents at risk. In addition, interventions are required to assist them to manage their feelings towards disclosure, as well as the consequences of violence for children and adolescents.

Diagnostic disclosure of Alzheimer's disease in Brazil: a national survey of specialized physicians / Revelação do diagnóstico da doença de Alzheimer no Brasil: prática corrente de médicos que atendem pacientes com demência

Abstract Background: The diagnosis of Alzheimer's disease (AD) can bring financial and emotional consequences to patients and caregivers. Whether or not the diagnosis should be disclosed to patients is a matter of debate amongst physicians and can be influenced by culture and experience. Objective: To investigate the current practice of physicians who attend and treat patients with dementia in Brazil regarding the disclosure of dementia diagnosis and compare the practice with what has been performed 15 years ago in the country. Methods: Data were evaluated using an electronic questionnaire. The questions used to carry out this research were similar to the questions of the study carried out 15 years ago 9. The form was sent to the Brazilian Academy of Neurology, the Brazilian Association of Geriatrics and Gerontology, and the Brazilian Association of Psychiatry, which forwarded it to their members. Analyses were conducted through non-parametric statistical tests, with a post-hoc assessment. Results: 397 physicians responded to the survey, of which 231 are neurologists, 124 geriatricians, 29 psychiatrists and 13 from other specialties. The mean age was 45.2 years. The majority (66.7%) of the physicians reveal the diagnosis of AD always or usually. The youngest group of neurologists were more likely to disclose the diagnosis than the oldest group with a significant difference between them. In comparison to the 2008 Brazilian study, the percentage of physicians who always or usually disclose the diagnosis has risen by 22%. On the other hand, 12.3% of the physicians rarely or never disclose the diagnosis, in comparison to 25,3% in 2008. The main reasons for not disclosing the diagnosis concern the patients' mental health. Conclusion: Advances in dementia knowledge and biomarkers availability probably explain the increase in the rate of disclosure. The main challenge is to reconcile the autonomy of affected individuals, mental health issues after the diagnosis and the family member's opinion.

Resumo Antecedentes: O diagnóstico da doença de Alzheimer (DA) pode trazer consequências financeiras e emocionais para pacientes e cuidadores. Revelar ou não o diagnóstico aos pacientes é uma questão de debate entre os médicos e pode ser influenciada pela cultura e experiência. Objetivo: Investigar a prática atual dos médicos que atendem e tratam pacientes com demência no Brasil quanto à revelação do diagnóstico de demência e comparar a prática com a qual era feita há 15 anos no país. Métodos: Os dados foram avaliados por meio de um questionário eletrônico. As perguntas usadas para realização dessa pesquisa foram similares às perguntas do estudo realizado há 15 anos 9. O formulário foi enviado à Academia Brasileira de Neurologia, à Associação Brasileira de Geriatria e Gerontologia, e à Associação Brasileira de Psiquiatria, as quais o encaminharam aos seus membros. As análises foram realizadas por meio de testes estatísticos não paramétricos, com avaliação post-hoc. Resultados: 397 médicos responderam à pesquisa, sendo 231 neurologistas, 124 geriatras, 29 psiquiatras e 13 de outras especialidades. A média de idade foi de 45,2 anos (standard deviation-SD = 11.6 years). A maioria (66,7%) dos médicos revela o diagnóstico de DA sempre ou habitualmente. O grupo mais jovem de neurologistas foi mais propenso a revelar o diagnóstico do que o mais velho, com diferença significativa entre eles. Em comparação com o estudo brasileiro de 2008, o percentual de médicos que sempre ou usualmente revelam o diagnóstico aumentou em 22%. Em contrapartida, 12,3% dos médicos raramente ou nunca o divulgam, em comparação a 25,3% em 2008. Os principais motivos para não o revelar dizem respeito à saúde mental dos pacientes. Conclusão: Avanços no conhecimento da demência e disponibilidade de biomarcadores provavelmente explicam o aumento na taxa de divulgação. O principal desafio é conciliar a autonomia dos indivíduos afetados, problemas de saúde mental após o diagnóstico e opinião do familiar.

Mortality rates by gender and sexual orientation reveal a disproportionally high mortality among cisgender men of unknown sexual orientation and men who have sex with women in a cohort of people living with HIV in Rio de Janeiro, Brazil

ABSTRACT Background: Antiretroviral therapy use has led to a decline in HIV-related mortality yet disparities by gender and/or sexual orientation may exist. In this study, we estimated hazards of death in people living with HIV (PLWH) according to gender and sexual orientation. Methods: We included PLWH ≥ 18 years enrolled between 2000 and 2018 at INI/Fiocruz, Rio de Janeiro, Brazil. Participants were grouped as cisgender or transgender women, cisgender men who have sex with men (MSM) or men who have sex with women, or cisgender men with unknown sexual orientation. We assessed disparities in the hazard of death using Cox proportional hazards models. Results: Among 5,576 PLWH, median age at enrollment was 35 years, 39% were MSM, 28% cisgender women, 23% men who have sex with women, 5% transgender women, and 5% men with unknown sexual orientation. A total of 795 deaths occurred in 39,141 person-years of follow-up. Mortality rates per 1,000 person-years were: 82.4 for men with unknown sexual orientation, 24.5 for men who have sex with women, 18.3 for cisgender, 16.6 for transgender women, and 15.1 for MSM. Compared to MSM, men with unknown sexual orientation had the highest death hazard ratio (adjusted hazard ratio [aHR] 2.93, 95% confidence interval [CI] 2.35-3.81), followed by men who have sex with women (aHR 1.17, 95%CI 0.96, 1.43); death hazard ratios for cisgender and transgender women were not statistically different. Conclusion: We observed disparities in the hazard of death for men with unknown sexual orientation and men who have sex with women despite universal access to antiretroviral therapy in Brazil. Future work should characterize and assist men with unknown sexual orientation with tailored policies and interventions. Increased hazard of death was not observed for transgender women, which probably results from interventions implemented in our service to reach, engage, retain, and support this population.

Investigation and analysis of information disclosure status and willingness of public hospitals based on social supervision / 中华医院管理杂志

Objective:To investigate the status and willingness of information disclosure based on social supervision in tertiary and secondary public hospitals, so as to provide reference for expanding information disclosure content.Methods:By using stratified cluster random sampling method, 66 tertiary public hospitals and 126 secondary public hospitals in 6 provinces were selected for questionnaire survey in April 2021. Thirty-one indicators in 3 categories and 5 groups were selected to obtain the information disclosure status and willingness. Chi-square test, variance analysis and paired t-test were used to conduct difference analysis. Results:The indicators with higher disclosure rates in public hospitals were drug prices and medical service price adjustments (93.9% in tertiary hospitals and 92.1% in secondary hospitals) and medical insurance reimbursement policies and compensation processes (90.9% in tertiary hospitals and 86.5% in secondary hospitals), while the indicators with lower disclosure rates were case fatality rates in low-risk groups (24.2% in tertiary hospitals and 26.2% in secondary hospitals), proportion of special needs medical services (27.3% in tertiary hospitals), and average daily outpatient visits per practitioner (27.3% in tertiary hospitals and 26.2% in secondary hospitals). The indicators that public hospitals thought could be disclosed at a higher rate were drug and medical service price adjustments, medical insurance reimbursement policies and compensation processes, and prices and medical insurance reimbursement of commonly used drugs and major medical consumables, while the indicators that were thought to be disclosed at a lower rate were some medical service safety indicators and hospital financial indicators.For all indicators, the percentage that the hospitals thought could be disclosed was higher than the percentage that had been disclosed.Conclusions:At present, China′s secondary and tertiary public hospitals have a low rate of disclosure about medical service efficiency, medical service safety, statistical summary cost and financial indicators. However, except for some medical service indicators and financial related indicators, the hospitals′ information disclosure willingness is relatively high, and the scope of information disclosure can be expanded in an orderly manner in steps.

Curta-metragem sobre revelação do HIV à criança: avaliação de uma estratégia de letramento em saúde / Short film on HIV disclosure to children: assessing a health literacy strategy / Cortometraje sobre revelación del VIH a niños: evaluación de una estrategia de alfabetización en salud

Objetivo: avaliar o potencial do curta-metragem "Nossas Histórias", sobre o preparo dos familiares da criança com HIV no processo de revelação, como estratégia de letramento em saúde. Método: estudo com método misto, implementado com a escala do tipo Likert e o método da roda. Participaram 28 enfermeiros de três regiões do Brasil em 2018. Foram realizadas análise estatística com índice de validade de conteúdo (IVC) superior a 0,80 e análise temática. Resultados: após análise, obteve-se IVC=0.89 no título; IVC=0.84 na sala de espera, IVC=0.94 na consulta de enfermagem; e média de 0.94 personagens e 0.89 consulta de enfermagem no desenvolvimento da história. Pontos positivos do curta-metragem foram: diversidade, o tempo e a estética agradável. Conclusão: avaliou-se que o conteúdo do curta-metragem é uma inovação estratégica com potencial de letramento em saúde e de aplicação em consultas de enfermagem no cuidado de advocacia da criança com HIV.

Objective: to evaluate the potential of the short film Nossas Histórias [Our Stories] about preparing family members of children with HIV in the disclosure process, as a health literacy strategy. Method: this mixed-method study of twenty-eight nurses from three regions of Brazil was conducted in 2018 using a Likert-type scale and the wheel method. Statistical analysis (with content validity index greater than 0.80) and thematic analysis were performed. Results: Analysis returned CVI = 0.89 in the title; CVI = 0.84 in the waiting room, CVI = 0.94 in the nursing appointment; and averages of 0.94 characters and 0.89 nursing consultation in the development of the story. Positive points of the short film were its diversity, time and pleasant aesthetics. Conclusion: the short film's content was found to be a strategic innovation with potential for health literacy and application in nursing consultations in advocacy care for children with HIV.

Objetivo: evaluar el potencial del cortometraje "Nossas Histórias", sobre la preparación de familiares de niños con VIH en el proceso de revelación, como estrategia de alfabetización en salud. Método: Estudio de método mixto, implementado con una escala tipo Likert y el método de la rueda. Participaron 28 enfermeros de tres regiones de Brasil en 2018. Se realizaron análisis estadísticos con índice de validez de contenido (IVC) superior a 0,80 y análisis temático. Resultados: Después del análisis, se obtuvo IVC=0,89 en el título; IVC=0,84 en la sala de espera, IVC=0,94 en la consulta de enfermería; y promedio de 0,94 personajes y 0,89 consulta de enfermería en el desarrollo del cuento. Los puntos positivos del cortometraje fueron: diversidad, tiempo y estética agradable. Conclusión: se evaluó que el contenido del cortometraje es una innovación estratégica con potencial para la alfabetización en salud y aplicación en consultas de enfermería en la defensa de los derechos del niño con VIH.

Validación cognitiva de un protocolo instruccional de reexperimentación emocional en adultos víctimas de violencia política en Colombia / Cognitive validation of an instructional protocol for emotional disclosure in adult victims of political violence in Colombia

Resumen La re experimentación emocional (RE) permite dar sentido a hechos traumáticos o estresantes mediante un proceso dirigido por instrucciones verbales o escritas, y por ello puede generar beneficios en el bienestar psicológico y la salud física autoinformada. El objetivo del presente estudio fue evaluar la comprensión de tres tipos de instrucciones experimentales (RE tradicional, RE con claves de aceptación y compromiso, y RE psicosocial) y una instrucción para el grupo control (RE trivial), mediante técnicas de validación cognitiva (pruebas centradas en el significado y verbalización de pensamiento) en personas expuestas a hechos de violencia política en Colombia. Para ello, se desarrolló un estudio de tipo cualitativo con corte instrumental, en el que se entrevistó a 42 colombianos víctimas de violencia política, en su mayoría mujeres, elegidos con un muestro por conveniencia. Las entrevistas fueron transcritas y codificadas mediante un análisis categorial mixto que tomó como referente procedimientos del Movimiento de Aspectos Cognitivos de la Metodología de Encuestas. Como resultado, los participantes comprendieron de manera diferencial las instrucciones dadas en cada protocolo, enfocándose en aspectos como el contexto sociopolítico en el caso del protocolo psicosocial, y en respuestas asociadas a la aceptación en el protocolo con claves de aceptación y compromiso. Se identificaron dificultades en la comprensión de algunas secciones de los protocolos, las cuales fueron ajustadas. Finalmente, se enfatiza la importancia de implementar técnicas de validación cognitiva para verificar la comprensión de instrucciones, protocolos o instrumentos, dado que el desempeño de los participantes y la calidad de las medidas de las intervenciones pueden verse afectados por la comprensión e interpretación de las instrucciones propuestas.

Abstract Emotional disclosure (ED) allows making sense of traumatic or stressful events through a process guided by verbal or written instructions, and thus may generate benefits in psychological well-being and self-reported physical health. The aim of the present study was to evaluate the understanding of three types of experimental instructions (traditional ED, ED with acceptance and commitment cues, and psychosocial ED) and one instruction for the control group (trivial ED), trough cognitive validation techniques (tests focused on meaning and verbalización of thought), in people exposed to events of political violence in Colombia. For this purpose, a qualitative study with an instrumental approach was developed, in which 42 Colombian victims of political violence, mostly women, were interviewed, chosen through convenience sampling. The interviews were transcribed and analyzed by means of a mixed categorical analysis that used as a reference procedures from the Cognitive Aspects of the Survey Methodology Movement. As a result, participants differentially understood the instructions given in each protocol, focusing on aspects such as the sociopolitical context in the case of the psychosocial protocol, and on responses associated with acceptance in the protocol with acceptance and commitment cues. Difficulties were identified in the understanding of some sections of the protocols, which were adjusted. Finally, the importance of implementing cognitive validation techniques to verify the understanding of instructions, protocols or instruments is emphasized, given that the performance of the participant and the quality of the measures of the experiments may be affected by the understanding and interpretation of the proposed instructions.

A prática do disclosure como estratégia para a segurança do paciente no Brasil e sua relevância para os cuidados em saúde de pessoas idosas / The practice of disclosure as a patient safety strategy in Brazil and its relevance to health care for the elderly / La práctica del disclosure como estrategia para la seguridad del paciente en Brasil y su relevancia para el cuidado de la salud de los ancianos

Objetivo: discutir a prática denominada disclosure no cenário contemporâneo da segurança do paciente, incluindo no debate o respeito aos cuidados em saúde de pessoas idosas e os desafios existentes para a implementação do disclosure no contexto das organizações de saúde. Metodologia: tratou-se de revisão narrativa, que tomou por base referências, guias e documentos orientadores adotados na Austrália e documentos publicados pela Organização Mundial de Saúde, Ministério da Saúde e Agência Nacional de Vigilância Sanitária que possuem ligação com o tema. A busca de referências bibliográficas deu-se pela plataforma Google Scholar, utilizando-se as seguintes palavras-chave: disclosure; dano; segurança do paciente; cuidados em saúde; e pessoas idosas. Resultados: a prática do disclosure está inserida na cultura de segurança do paciente em diversas instituições a nível internacional. No Brasil, contudo, não é uma prática reconhecida, nem mesmo nas normativas vigentes que visam a segurança do paciente. A literatura consultada demonstrou que, quando bem abordada, a comunicação aberta e honesta entre profissional da saúde e paciente, acerca de um dano ocorrido durante os cuidados, reduz conflitos e demandas judiciais. Conclusões: disclosure, como prática de comunicação, mostra-se relevante também para idosos, pois traz engajamento desses pacientes nas decisões inerentes a seus cuidados, promovendo seu direito à informação; trata-se, portanto, de importante ferramenta a ser utilizada em organizações hospitalares no Brasil, com vistas ao respeito a direitos e à segurança do paciente

Objective: to discuss the practice of disclosure in the contemporary scenario of patient safety, including respect for the health care of the elderly and the existing challenges to the implementation of disclosure in the context of health care organizations in the debate. Methods: this is a narrative review based on references, and guiding documents adopted in Australia, as well as documents published by the World Health Organization, the Brazilian Ministry of Health and the National Agency for Health Surveillance on this topic. Bibliographic references were searched through the Google Scholar platform using the following keywords: disclosure, harm, patient safety, health care, and the elderly. Results: the practice of disclosure is part of the culture of patient safety in several international institutions. However, in Brazil it is not an accepted practice, not even in the current patient safety regulations. The literature reviewed shows that open and honest communication between health professionals and patients about a harm that occurred during medical care reduces conflicts and lawsuits, if properly addressed. Conclusions: disclosure as a practice of communication is also important for older patients because it involves them in decisions about their care and promotes their right to be informed. Therefore, it is a valuable tool that should be used in hospitals in Brazil to preserve patients' rights and safety.

Objetivo: discutir la práctica denominada disclosure (divulgación) en el escenario contemporáneo de la seguridad del paciente, incluyendo en el debate el respeto por el cuidado de la salud de las personas mayores junto con los desafíos existentes para la implementación de disclosure en el contexto de las organizaciones de salud. Metodología: se trata de una revisión narrativa, que se basó en referencias, guías y documentos orientadores adoptados en Australia y documentos publicados por la Organización Mundial de la Salud, el Ministerio de Salud y la Agencia Nacional de Vigilancia de la Salud de Brasil, que están vinculados al tema. La búsqueda de referencias bibliográficas se realizó a través de la plataforma Google Scholar, utilizando las siguientes palabras clave: disclosure; daño; seguridad del paciente; atención de la salud y personas mayores. Resultados: la práctica de disclosure es parte de la cultura de seguridad del paciente en varias instituciones a nivel internacional. En Brasil, sin embargo, esa no es una práctica reconocida, ni siquiera en las normas vigentes orientadas a la seguridad del paciente. La literatura investigada demuestra que, cuando la comunicación bien dirigida, abierta y honesta entre los profesionales de la salud y los pacientes, sobre los daños ocurridos durante la atención a la salud reduce los conflictos y las demandas Conclusiones: disclosure, como práctica de comunicación, también es relevante para los pacientes ancianos, ya que los involucra en las decisiones inherentes a su cuidado, promoviendo su derecho a la información, por lo que es una herramienta importante para ser utilizada en las organizaciones hospitalarias de Brasil, con miras a respetar los derechos y la seguridad del paciente.

Corporate Governance Practices Leads to Value Enhancement of Stakeholders of Listed Companies in Tamil Nadu

The study has made an attempt on the Corporate Governance practices of listed companies in the respective study area. It mainly focuses on the CG and rests upon four pillars, viz., Transparency, Full disclosure, Independent monitoring and being fair to all, especially to minority shareholders. Corporate Governance refers to myriad mechanisms that shape the structure of incentives, disincentives, and prohibitions, under which an issuer's management makes decisions. In a modern corporation operating in a globalised world, concepts of disclosure and corporate governance are intertwined. Disclosure mechanism can be associated with the broader view of corporate governance that is not just restricted to shareholders, but also the aggregate of institutional and organizational factors that influence large decisions of public companies because public companies generates capital from various constituents. Corporate governance is an area that secures how efficiently manages corporations by the use of incentive mechanism, such as contracts, organizations and legislations. Transparency, corporate fairness and accountability are the important pillars of corporate governance. It is known for formally establishing guidelines regarding how a company is going to function. Enhanced and revised corporate governance policies are required in order to reduce the effect of financial crisis. International investors also invest in companies who follow good governance principles. From the international point of view they are the basic building blocks of the market. The researcher has used both Primary data and Secondary data methods of data collection. Simple random sampling method has been adopted for the study. The statistical tools like percentage analysis, chi-Square test, ANOVA and t-Test has been used for the study. The study highlights that 60 per cent of the companies are organizing programmes/talks/training for Independent Directors in matters relating to Corporate Governance. It is found that 100 per cent of the listed companies i.e. all the listed companies have disclosed to the shareholders in the annual report in relation to financial calendar. The basis of non-mandatory provisions and suggested items are to be included in the corporate governance. It can be concluded that listed companies are following only forced regulation and are not showing much interest in the voluntary compliance of rules and regulations.

Paradoxos na divulgação de salários de servidores em municípios / Paradojas en la difusión de información sobre los sueldos de los funcionarios por los municipios / Paradoxes on the disclosure of civil servants' salary information by local governments

Resumo A folha de pagamento é uma das maiores despesas do município, porém uma das mais difíceis de serem monitoradas. Se a divulgação dos salários de servidores é de interesse público para controle, a divulgação das despesas com pessoal, na forma como previsto em lei, pode não ser suficiente para detectar diversos tipos de irregularidades. Analisamos os paradoxos envolvidos na divulgação de dados da folha de pagamento e as tensões que emergem do posicionamento de diversos interessados na questão. Entrevistamos profissionais de prefeituras, sindicatos, empresas de softwares, tribunais de contas, organizações sociais e jornalistas. Procuramos reunir diversas perspectivas e interesses envolvidos na divulgação de salários e benefícios de servidores como exemplo dos desafios de ampliar a transparência pública. Com abordagem indutiva, apresentamos uma lista não exaustiva de irregularidades que reconhecidamente ocorrem no país e que, por não serem detectadas apenas com os dados divulgados nos portais de transparência, demandam cooperação entre diversos atores de controle.

Resumen La nómina es uno de los mayores gastos del municipio, pero también es uno de los más difíciles de monitorear. Si la divulgación de los salarios de los funcionarios públicos es de interés público para su control, la divulgación de los gastos en personal según lo dispuesto por la ley puede no ser suficiente para identificar algunas irregularidades. Analizamos las paradojas presentes en la apertura de dichos datos y las tensiones que surgen del posicionamiento de los diferentes interesados en el asunto. Entrevistamos a profesionales de alcaldías, sindicatos, empresas de software, tribunales de cuentas, organizaciones sociales y periodistas para reunir diversas perspectivas e intereses involucrados en la divulgación de sueldos y beneficios de los servidores públicos como ejemplo de los desafíos para ampliar la transparencia pública. Con un enfoque inductivo, presentamos una lista no exhaustiva de las irregularidades que a menudo ocurren en Brasil que, por no ser detectadas simplemente a través de los datos publicados en los portales de transparencia, exigen la cooperación entre los diferentes agentes de control para combinar múltiples fuentes de datos y evidencias.

Abstract: Although local governments' payrolls are a significant expense, they are one of the most difficult to monitor. The disclosure of civil servants' salaries to improve control is a measure of public interest, but the mere information on the government's personnel expenses as provided by law may not be sufficient to detect irregularities. This study analyzes the paradoxes of disclosing salary information and the tensions among the parties related to this issue. We interviewed local government employees, unions, software companies, courts of accounts, nonprofit organizations, and journalists, gathering different interests and perspectives, addressing the issue as an example of the challenges to improve public transparency. Based on an inductive approach, the research offers a non-exhaustive list of irregularities in Brazil that are not detected by simply disclosing information in transparency portals. Our findings point out that detecting and addressing such irregularities require the cooperation of several control agents to combine multiple data sources and evidence.

The mediating effect of self-efficacy between self-disclosure and medical coping modes in adolescents with depression / 中华行为医学与脑科学杂志

Objective:To analyze the relationship between self-disclosure, self-efficacy and medical coping modes in adolescent depression, and explore the mediating effect of self-efficacy between self-disclosure and medical coping modes.Methods:Using the convenience sampling method, a total of 403 adolescents with depression in a tertiary psychiatric hospital in Beijing were recruited from March 2020 to March 2021. The data of general information questionnaire, distress disclosure index scale, medical coping modes questionnaire and general self-efficacy scale were collected.SPSS 26.0 software was used to analyze the correlation between self-disclosure, self-efficacy and medical coping modes of adolescent patients with depression, and Stata 13.1 software was used to analyze the mediating effect of self-efficacy between self-disclosure and medical coping modes.Results:The scores of dimension of the medical coping modes of adolescent depression patients were(16.90±3.84) for facing, (16.34±2.88) for yielding, (12.48±4.31) for avoiding, (30.47±9.91) for self-disclosure and (19.63±6.54) for self-efficacy, respectively. Self-disclosure and self-efficacy were positively correlated with facing of medical coping modes ( r=0.301, 0.327, both P<0.01), and negatively correlated with yielding of medical coping modes ( r=-0.465, -0.487, both P<0.01). Self-disclosure was negatively correlated with avoidance of medical coping modes ( r=-0.118, P=0.018). The direct effect of self-efficacy on medical coping modes was 0.103, and the total effect was 0.365, and the mediating effect accounted for 28.22%. Conclusion:Self-efficacy partially mediates between self-disclosure and medical coping modes in adolescents with depression.

1．Millennial Medical Record Project: Secondary Use of Medical Data for Research and Development Based on the Next Generation Medical Infrastructure Law / 薬剤疫学

The beginning of EHR (Electronic Health Record) can be traced back to the development of the Medical Markup Language (MML) from 1995 to 2000. In 2001, EHR with MML as a database structure was developed and expanded to Kumamoto, Miyazaki, Tokyo, and Kyoto (Dolphin Project). After that, the need for medical information management at the national level was recognized, and the need for secondary use of medical information was also recognized, and in 2015, the national level version of the EHR, the “Millennial Medical Record Project” began. The number of connected medical institutions reached 106 in the four years up to FY2018. In December 2019, the Life Data Initiative, a general incorporated association, became the first certified company under the Next Generation Medical Infrastructure Law, and is operating with the aim of achieving independent profitability, including the EHR department, which does not depend on subsidies.

Devolução dos resultados de pesquisa em psicologia para os respectivos participantes / Return of results from brazilian researches in psychology to research participants / Devolución de resultados de investigadores en psicología brasileños para los encuestados

A devolução de resultados para participantes é um dever ético em pesquisa. Objetivou-se identificar as práticas adotadas pelas(os) pesquisadoras(es) brasileiras(os) em psicologia para devolução dos resultados de pesquisa para as(os) respectivas(os) participantes. Realizou-se uma pesquisa online, da qual participaram 68 pesquisadoras(es) brasileiros em psicologia. As(os) participantes tinham entre 32 e 73 anos (M = 49,8; DP = 11,5), 62% eram mulheres, com tempo médio de formação desde o doutorado de 14,3 anos (DP = 9,6). 43% das(os) participantes respondeu que frequentemente realizava alguma prática de devolução, presencial ou coletiva, por meio de cursos de extensão, capacitações e palestras. Praticar a devolução de resultados de pesquisa em psicologia pode motivar a colaboração em pesquisas, além de fazer cumprir um direito dos participantes.

Although the return of results to participants is an important ethical issue in research, little is known on how Brazilian researchers in Psychology perform these practices. The objective of this article was to identify practices adopted by Brazilian researchers in Psychology to return research results to their respective participants. For this online cross-sectional study, we created a specific questionnaire, which was answered by 68 researchers in Psychology who were leaders of research groups listed in CNPq's Research Groups Directory, for at least 1 year. Participants ranged from 32 to 73 years old (M = 49,8; SD= 11,5), 62% were women, and, in average, they have been working after doctorate for 14,3 years (SD = 9,6). 43% of participants reported frequently performing some form of devolution of results, mainly collective face-to-face practices, such as extension courses, trainings, or lectures. We conclude on the necessity of return of results practices in Psychology. When sharing results with people who were involved in researches, besides conforming with ethical principles, researchers may motivate participants to continue collaborating with research development.

Devolver resultados a los participantes es un deber ético en la investigación. El objetivo fue identificar las prácticas adoptadas por los investigadores brasileños en Psicología para transmitir los resultados de la investigación a los respectivos encuestados. Se realizó una encuesta en línea, en la que participaron 68 investigadores en Psicología brasileños. Los participantes tenían entre 32 y 73 años (M = 49,8; DT = 11,5), el 62% eran mujeres, con un tiempo promedio desde el término del doctorado de 14,3 años (DT = 9,6). El 43% de los participantes respondieron que frecuentemente realizaban alguna práctica de retorno. Las devoluciones presenciales y colectivas a través de cursos de extensión, capacitación y conferencias fueron las principales prácticas indicadas. Se concluye que es necesaria una mayor discusión sobre las prácticas de devolución en Psicología. Al compartir los resultados de la investigación con los involucrados en ella, además de cumplir con un deber ético, es posible motivar a los participantes a continuar colaborando con el desarrollo de investigaciones.

Content validation to support the monitoring of disclosure of HIV diagnosis in childhood / Validación de contenidos para subvencionar el seguimiento de la comunicación del diagnóstico del VIH en la infancia / Validação de conteúdo para subsidiar o acompanhamento da comunicação do diagnóstico de HIV na infância

ABSTRACT Objectives: to create and validate the content of a guide for monitoring the communication of the HIV diagnosis in childhood. Methods: methodological study, with a design guided by the Knowledge-to-Action (KTA) Framework, supported by a participatory approach. The guide's content was structured according to the communication elements proposed by Lasswel from review studies. Results: the content was validated by 26 experts from nursing, medicine, psychology and pedagogy, using a Likert-type scale for relevance, clarity and precision. Data collection took place online and achieved a Content Validity Index of 0.94. Conclusions: the guide can contribute to the practice of professionals who care for children living with HIV, to support the family in communication and to the child's right to know their diagnosis. For further research, it is recommended to create and validate the face of the technology in order to implement it.

RESUMEN Objetivos: crear y validar el contenido de una guía para el seguimiento de la comunicación del diagnóstico de VIH en la infancia. Métodos: se trata de un estudio de tipo metodológico, con diseño guiado por el Modelo de Traducción del Conocimiento en Acción y apoyado en el enfoque participativo. El contenido de la guía se estructuró según los elementos de comunicación propuestos por Lasswell a partir de los estudios de revisión. Resultados: el contenido fue validado por 26 jueces de enfermería, medicina, psicología y pedagogía utilizando una escala tipo Likert para la relevancia, la claridad y la precisión. La recogida de datos se llevó a cabo en línea y alcanzó un Índice de Validez de Contenido de 0,94. Conclusiones: la guía puede subvencionar la práctica de los profesionales que asisten a los niños que viven con el VIH, así como apoyar a la familia en la comunicación y garantizar el derecho del niño a conocer su diagnóstico. Para la investigación, se recomienda crear y validar la interfaz de la tecnología para implementarla.

RESUMO Objetivos: criar e validar o conteúdo de um guia para o acompanhamento da comunicação do diagnóstico de HIV na infância. Métodos: estudo do tipo metodológico, com desenho guiado pelo Modelo de Tradução do Conhecimento em Ação, sustentado pela abordagem participativa. O conteúdo do guia foi estruturado segundo os elementos da comunicação propostos por Lasswel a partir de estudos de revisão. Resultados: o conteúdo foi validado por 26 juízes da enfermagem, medicina, psicologia e pedagogia, por escala do tipo Likert para relevância, clareza e precisão. Coleta de dados online, que atingiu o Índice de Validade de Conteúdo de 0,94. Conclusões: o guia poderá subsidiar a prática dos profissionais que atendem crianças que vivem com HIV, o apoio à família na comunicação e o direito da criança em saber o seu diagnóstico. Para a investigação, recomenda-se criar e validar a face da tecnologia para implementá-la.

Communicating bad news in the practice of nursing: an integrative review

ABSTRACT Objective To analyze current scientific knowledge about communication of bad news by nurses. Methods This is an integrative literature review carried out by searching articles published in national and international journals indexed at SciELO, MEDLINE® (PubMed®), Scopus, Bireme and CINAHL, from 2010 to 2020, by crossing the controlled descriptors "communication", "revelation of the truth", and "nursing", and the uncontrolled descriptor "bad news". Results Ten articles with qualitative and cross-sectional design, as well as case reports were included. The analysis indicated the evidence available in the literature showed the nurses' lack of ability to communicate bad news, although they are professionals who have close contact with patients and families and who establish a strong bond with them, and often face challenging situations for communicating bad news. Conclusion There is an evident need to invest in training of nurses on skills to communicate bad news and establish a nurse-patient bond when dialoguing with the family. There are few studies in the literature addressing this issue; therefore, it is recommended to perform research that can contribute to improvements in the clinical practice and developing protocols to promote such care.